BRCA 2 Gene Mutation https://lindseyhein.com Wed, 01 Jan 2014 17:11:00 +0000 en-US hourly 1 https://wordpress.org/?v=7.0 Our Year: 2013 https://lindseyhein.com/2014/01/01/our-year-everyones-doing-it/ https://lindseyhein.com/2014/01/01/our-year-everyones-doing-it/#comments Wed, 01 Jan 2014 17:11:00 +0000 http://outforaruntraining.com/2014/01/01/our-year-2013/ more »]]> So the hot thing to do on blogs is a year review or something like that. And I definitely can’t be left behind.
This took some work to go back and look things up and I’m not really into doing a lot of work, so read and make me feel better about the time I spent on this post.

Along with “move viewed”, I also slipped in “my favorite” post of the month too…. which sometimes is closer to the least viewed….. haha.

Our “most viewed” of the year was my BRCA Gene post by a lot, with “Why Runners are Really Annoying” in a not so close second.

January:

Most Viewed: Why I’m Staying Home, The Mile Repeat

My Favorite: Running Scared

Race Reports: Rehoboth Beach Marathon

Favorite Life Thing: Being content with my decision to quit my job.

The early days of my starting to be home full time.

February:

Most Viewed: The last 20, Tired & Hungover, When a long run was just a long run

My Favorite: A Frozen Progression Run

Race Report: None

Favorite Life Thing: New Nephew born, Evan Emre Ozbilge 

Glenn’s sister Megan with Niece Sofia & a brand new Evan.

March:

Most Viewed: Shamrock Marathon Recap

My Favorite: Shamrock Marathon Recap, The Big PR from the Coaches Prespective

Race Report: Shamrock Marathon Recap

Favorite Life Thing: No really, I was happy about that race. 

Finished with my fastest 26.2 to date.

April:

Most Viewed: I added miles & I got tough

My Favorite: I added miles & I got tough

Race Report: Rock the RelayCarmel Half Marathon

Favorite Life Thing: I met a new friend, who is one of my best now- Ashley, My last big event for Back on My Feet & transitioning to being a Stay at Home mom full time (although I quit in late December- I still worked for them through end of April.

Rock the Relay
Back on My Feet Birthday Luncheon- my last big hooray. 
This is after the Indy Women’s half- but wanted to share a picture with Ashley. I wasn’t creepy enough to ask her for a pic after Carmel, when we’d just met 30 minutes earlier.

May:

Most Viewed: Triathlon Training- Muncie 70.3

My Favorite: Learning to be a swimmer, or many a runner who can swim

Race Report: 500 Festival Mini Marathon

Most Exciting Life Thing: My sister got marriedWe launched our Coaching Business, Marshall started walking, Glenn returns to running after two months off, My first Mother’s Day

After the 500 Festival Mini Marathon- used this race as a training run for a race I didn’t end up doing… can’t plan everything!
Ericka & Rick at their destination wedding. Just the two of them, wish we could have been there!

June: 

Most Viewed: Triathlon #1 Recap

My Favorite: My road to the Chicago Marathon

Race Report: Triathlon #1 Recap

Most Exciting Life Thing: Marshall’s first birthday, Glenn’s first Father’s Day, Starting to run with the RUSTED BEARS- new friends!

First open water swim survived!
Marshall turns one
New friends: Rusted Bears! Right before Amy’s Half! 

July:

Most Viewed: Ironman Muncie, Do you have a running BFF?

My Favorite: Ironman Muncie

Race Report: Fire Cracker SixIronman Muncie

Most Exciting Life Thing: Ironman Muncie, Having the balls to finally get my blood work done for my gene test

Before the swim: Scared, Nervous, Excited, Focused.
Entering the pain train of 13.1 miles after swimming 1.2 & biking 56. Never felt anything like it. Different kind of hurt than end of marathon pain.
My loves who cheered me on!

August: 

Most Viewed: BRCA 2 Gene & my decision

My Favorite: BRCA 2 Gene & my decision

Race Report: Eagle Creek Trail Half Marathon, Glenn CRRG 5K #1, Lindsey’s CRRG 5K, Glenn’s CRRG 5K #2Indianapolis Women’s Half Marathon

Most Exciting Life Thing: No post really, but we both turned 30 & celebrated 5 years of marriage, joining Oiselle Team!

Glenn’s 30th Birthday
When Glenn took second at the Eagle Creek Trail Half Marathon. The kid that won had never ran a race before & wore big beats by dre head phones. Really.
5th Wedding Anniversary 
Running in my Oiselle Gear w/ Cadence and niece Giovanna.

September:

Most Viewed: Not your typical Tuesday

My Favorite: Not your typical Tuesday

Race Report: Ripple Effect, Chicago half marathon

Most Exciting Life Thing: Friends throwing me a “bye bye boobies” part, Vacation to Sonoma, Marshall’s first hair cut- I don’t know if this really makes the list, but the picture is really cute.


Glenn & Marsh after the Ripple Effect.
My amazing friends threw me a going away party right before my mastectomy.
Beautiful little vacation in Sonoma with Glenn’s whole family for a wedding. 
Britney making his handsome. That’s right, not shirt at the salon.

October:

Most Viewed: Surgical Bras are sexy right?

My Favorite: My take on Glenn’s Chicago Marathon, And then I cried some more

Race Report: Chicago Marathon- What now?

Most Exciting Life Thing: Getting my surgery OVER with, Going trick or treating with the cutest banana I’ve ever seen.

Mom watching Marshall during my surgery, Sister Visiting me in hospital.

The race that WASN’T meant to be.
Halloween

November:

Most Viewed: What’s REALLY annoying about Runners

My Favorite: Monumental Marathon Weekend

Race Report: Monumental Marathon, Drumstick Dash

Most Exciting Life Thing: New nephew – Gunner Ceferino Gil, Glenn’s new Marathon PR

Niece Giovanna & new nephew Gunner
Glenn redeeming himself after a bad race at Chicago, just three weeks later. 
Pre Drumstick Dash!
Stroller running it at the Drumstick Dash

December:

Most Viewed: Dominating the Stroller Run

My Favorite: Strong

Race Reports: None

Most Exciting Life Thing: New niece- Josephina Lynn Stazonne

All the kids on Glenn’s side of the family. Evan, Josephina, Sofia & Marshall.
Christmas 2013
Christmas 2013
Happy New Year Everyone!!!!
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Strong. https://lindseyhein.com/2013/11/27/strong/ https://lindseyhein.com/2013/11/27/strong/#comments Wed, 27 Nov 2013 13:07:00 +0000 http://outforaruntraining.com/2013/11/27/strong/ more »]]> Today I felt strong. I only ran for 30 minutes, but during those 30 minutes I thought a lot about the past year. I thought about the decisions I’ve made, the hard ones, the easy ones, the happy moments and the sad moments. I thought about what I want to do, all the things I want to change and how I want to do life better. I thought about getting more involved in projects I’m passionate about, about not just living for this family, about growing our coaching business, running marathon PRs, having babies, being a better friend, being a better mom and wife…. being better. Doing life better. I want to be part of the happy, I want to inspire and be inspired and take action on what I’m inspired by. And this is what running gives you. Motivation to do those things. Motivation to be a better person far beyond running.

I thought about how last year at this time, I was in between marathons, coming off a really hard race that shook my confidence. No matter how hard you try, being totally prepared for a marathon so soon after having a baby is really hard. I don’t care who you are. It’s hard. Your body is physically and emotionally on a roller coaster. But we all have races like that- not just coming back post baby, there are a million reasons for having a race like that. Every race can shake your confidence or blow it up to making you feel super human.

I thought about how last year at this very time in my life, I was scared daily about something that is almost behind me. I kid you not, after having Marshall, I walked out of the hospital with my boobs filling of milk, freaking out, thinking what if I have breast cancer and I can’t tell because I get clogged milk ducts and I can’t handle this and oh my gosh breast feeding had to be one of the hardest things I’ve ever experienced. (Minus the last 10 miles of said race I mentioned above..)


I tried hard to embrace the bounding experience with my first child, but a big part of me was frantically worrying about the what ifs. Now knowing I won’t ever have that experience again, I am so thankful I had it with him. Last year at this time I wouldn’t have even typed the words cancer, because I would have been too scared to. My genetic fate was haunting me. And now it’s not. Now I know. There are things I can’t control, but the things I can control, I will.

It was when I was on the bike trainer, training for my first 70.3 this summer that I decided to make an appointment to get the blood test to see if I had the BRCA 2 gene. I mentioned this in my original post-

I remember swimming laps thinking about it and I can guarantee that my thoughts were a lot more positive in the pool, on the bike or out running than they would have been sitting around feeling sorry for myself. “

This is why I love running, or really you can categorize this into sport or exercise in general- whatever it is that gives you what it gives me. This is why we become addicted to it. It drives us to be stronger, not only in physical aspects of life, but emotionally as well. It helps us to make tough decisions. I know, like any hobby or activity you spend excess amounts of time doing, running can be a very selfish thing. But it’s a selfish thing that makes me a better person. And it probably makes you a better person too.

There are days when I wake up and it’s the last thing I want to think about but everyday I finish up, I know I will be happier, stronger, more independent and BETTER if the I’ve given myself the gift of endorphins.

And I’ll close this with a piece of an email (an email that had me tearful) I received from one of the athletes we coach, Belle, who finished her first half marathon this weekend:

“Lindsey, in short, running has given me a new way to look at life, a new way to prioritize, a new way to live with dignity and grace.” 

Preach on Belle. Go be the best self you can be and if running or rowing or playing tennis, whatever it is helps you do that… do more of that.

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The definition of TMI. Boobs, Boobs, Boobs. https://lindseyhein.com/2013/11/22/the-definition-of-tmi-boobs-boobs-boobs/ https://lindseyhein.com/2013/11/22/the-definition-of-tmi-boobs-boobs-boobs/#comments Fri, 22 Nov 2013 13:40:00 +0000 http://outforaruntraining.com/2013/11/22/the-definition-of-tmi-boobs-boobs-boobs/ more »]]>
I’ve been back at the running thing for almost 2 weeks now. Yippie! Back to our usual…



I have my reconstruction surgery date tentatively set for January 15th. I’m going to pester them to see if they’ll bump it up to the week before because I’m trying to do a little Florida trip with my older sister to visit my younger sister and her kids that weekend. I swear the nurse hates me because I’m always trying to get my restrictions lifted early and move the process along too faster. I already asked once, but after doing some calculations I don’t see why they denied letting me do it the week before unless she just didn’t have time on her schedule.

I’ve gone to my plastic surgeon three times now for fills and it’s weird EVERY time. She has a little metal detector thing and finds the port in my expander and gives me what feels like a shot and literally just fills them. (I can’t really feel much… I mostly feel pressure and what I know is a prick) You sit there and watch your boobs grow and then they are sore for a couple of days.

This week I wasn’t able to find help with Marshall so he came with. He sat on my lap and played with the saline bag. He was so intrigued by what she was doing to his mom that he actually kind of sat still. First time watching his mom get boob fills. Good stuff.

In my pre surgery post, I talked about the things I was nervous/scared about, including the drainage tubes, expanders & numbness:

– The drainage tubes were definitely as bad as I imagined and while mine stayed in longer than most, it really wasn’t all that long (2 weeks). And when it was time for them to come out- one of my best friends is an RN, so I had front door service. It’s love when your friend comes over and takes your drainage tubes out.

Expanders are 10 times less weird than I thought they would be. The concept is weird, but since I’m not sore from surgery anymore, I often forget they are even there. Until I change my clothes. Or bump into something and my boobs are hard as a rock.

The numbness sucks. I can’t really feel much and it’s freaking weird. Every time I need the band aides to come off after getting filled I make Glenn do it because I can’t stand to touch them. Freaks. me. out. This was something I anticipaed and I STILL REALLY don’t like it. I’m sure it will all get better though and it’s really not that big of a deal. But, no sugar coating, it sucks.

And what was much harder than I anticipated was not being able to lift Marshall. I had a weight restriction of 3-5 lbs for the first two weeks. I obeyed that pretty much perfectly, with lot’s of amazing help from our families and friends. But then my weight restriction went to 10-15 lbs for the next four weeks and I started feeling like myself again. Marshall weighs around 22 lbs, so that lasted approximately one week. There is only so much time your family and friends can take off and help you lift your kid out of his crib. I’ve often said this time period would have been MUCH easier if I went to work Mon-Fri, but my full time job is chasing this crazy kid around and the most exhausting part was not being able lift him as much as you’d like. While I did break the rules, I tried to limit it, so I found myself on the floor more than usual, which is already a lot.

What’s going down now: 

After my first fill, my boobs were already larger than they’ve ever been (other than when I was breastfeeding) and it’s just weird, like I’m in that 13 year old awkward stage that I never actually went through at 13 like most girls. I felt self conscious at the gym for the first time this week after my most recent fill. When I was stretching, I kept looking in the mirror thinking this looks normal right? People can’t tell? I don’t know.

I’m only due for one more fill. I’m not a boob person. I like my small boob self, but I can’t justify going through all of this and NOT helping myself out a bit in the department. The runner in me is worried they’ll look weird when running in just a sports bra on the hot summer days. Just a little too perky? Why do those things look so hard? And GASP, what if i have to wear two sports bras? This A cup girl is used to getting by with a size small champion sports bra from target and that’s it.

So, that’s that. I’m thankful for my health and thankful I know that I have this gene and have been able to take charge. And now you know WAY MORE about my boobs than you really need or want to know. 

Here’s my running timeline pre and post reconstruction:

  • Build base November 8th-January 14th. 
  • Enjoy some time off while I recover January 15th-Febuary 12th
  • Build base back up and get in at least one 20 miler February 13th-April 21st.
While I would LOVE a PR in Boston, I don’t know if it’s in the cards. My plan is to enjoy running, enjoy it being carefree and just focus on running a strong race. Sometimes your strongest, most enjoyable races aren’t your PR races. I’ve ran a handful of marathons just for fun or with a friend for their first time. They are rewarding in a different way. I’m not throwing out the idea of a PR, I’m just going to see how everything plays out. 
I’ll write about what my runs will actually consist of, but right now it’s just running pretty easy consistently 5-6 days a week with a hardish mile here and there. We met the Rusted Bear crew out at Morgan Monroe on Saturday and I had my longest run yet of 8 miles. (5 on the trail, 3 on the road) It felt good.

I’m excited to run the drumstick Dash on Thanksgiving with the stroller, although I’ve ran hundreds of miles with the stroller, I’ve never ran a race with it. I’m working on my training plan and will post some details soon! 

Ta Ta!

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And then I cried some more- Recovering now! https://lindseyhein.com/2013/10/07/and-then-i-cried-some-more/ https://lindseyhein.com/2013/10/07/and-then-i-cried-some-more/#comments Mon, 07 Oct 2013 13:44:00 +0000 http://outforaruntraining.com/2013/10/07/and-then-i-cried-some-more-recovering-now/ more »]]>

I wrote about how I felt the night before surgery last Monday. I tried to be brave and as much as I was at times, I have definitely been scared too. We left Marshall in Bloomington with my mom and headed to the plastic surgeon first thing Monday morning to get marked. The thought of that alone made me cringe. 

I cried a little bit on the car ride up. Glenn knew I was sad, but we rode mostly in silence. He wants to be supportive, while not over-bearing and he wants to talk about it if I do, but wants to make sure he doesn’t talk about it if I don’t want to. I’m sure it’s all confusing to him- when to say what to make the hormonal, emotional wife smile and not cry. 

And then I cried again when the nurse explained the surgery aftercare. I started getting really emotional. I was trying to smile and nod and not cry, but it was impossible. This was making it real and in just a few hours I was heading to the operating room. 

Once we were all registered, we headed up to my prep room and the nurses knew I was nervous and were really great about calming me down. My breast surgeon came in and gave me a big hug, went over the game plan and headed out. I asked the anesthesiologist if he could give me something to zone out before they took me back, so he gave me some versed while I was answering a few questions from the nurse and the next thing I remember is waking up in the recovery room. Apparently then I cried some more though and Glenn and I said goodbye after that but I do not remember one bit of that.

My mom and Glenn came up to my room as soon as they could and then my sister Shelby and niece Giovanna came to visit, along with Sarah later that evening. Emily and Andy came up in the morning with Coffee and Bagels from Einsteins, my fav. Gosh, I had good friends. 

A few hours post surgery- think I’ve had 19 sleeves of saltines by now.
My mom watching Marshall for us at home, My sister and I at the hospital

I’ve been recovering at my parents house since Wednesday. It’s been fairly uneventful and my mom, sister, Grandma and Glenn have been very helpful. Marshall got to spend two full days with my Grandma (his mimi) and they had a really good time. 

Thursday night, I was nauseous with a pounding headache all night. In the morning, the headache was so bad I could hardly walk. I couldn’t take it any more so my parents Emergency Department. I’ve never had a migraine but am assuming this is what they must feel like.

They ended up giving me an IV with Toradol and Zofran and I felt better within 20 minutes. Even though I had drank plenty of water, I was apparently dehydrated. I also stopped taking almost all narcotics because I think the build of of them had something to do with my headache. I’m now just on tramadol and taking one loratab in the evening. I would deal with almost any pain to not have a headache like that again.

How it’s going now- I feel 9,000 times better than the first couple of days. But holy crap I’m tired and ready to rip these freaking drainage tubes to come out. They don’t gross me out but they are uncomfortable and make showering and sitting in certain positions uncomfortable. I’m have been hoping they would get to come out today when I go in for my follow up appointment with plastics, but I have a feeling it will take a few more days as the draining hasn’t slowed as much as they are supposed to to come up. They say it could take up to two weeks. Realistically, I’m hoping for Wednesday or Thursday. 

And I only had one minor meltdown yesterday but the rest of the day was pretty good.

I’m really excited to get through these first two weeks and move on. I’ll still be big time recovering for awhile, but will get much better each week. I have a weight restriction of  3-5 lbs for the first two weeks and then 10-15 until week six. It’s my natural instinct to just grab Marshall, so this very weird to not be able to pick him up. I’ve had lot’s of help so far and have plenty of help through next week as well. Kind of playing weeks 3-6 by ear. I can’t imagine going through this and being sick on top of it. I am very thankful for this.

Out on a very short walk. Loss button ups are the easiest ways to hide the tubes!

I feel very supported and loved and am overwhelmed by the kindness of friends and family who have sent, cards, flowers, food and encouragement during this time. My mom has taken time off work to help and next week Glenn’s family is going to help us out. 

And I was reminded once again while I was in the hospital, how special nurses really are. They make you feel cared for and safe. 
Alright- I don’t know about you- but I’m hella excited to move on from this and watch Glenn in Chicago next weekend. Everyone cross your fingers that these damn tubes are out!

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Not your typical Tuesday. https://lindseyhein.com/2013/10/01/not-your-typical-tuesday/ https://lindseyhein.com/2013/10/01/not-your-typical-tuesday/#comments Tue, 01 Oct 2013 01:37:00 +0000 http://outforaruntraining.com/2013/10/01/not-your-typical-tuesday/ more »]]>

No big deal, just heading to the hospital to have a prophylactic double mastectomy tomorrow. This is something I’m not shocked about. I’ve known the probability that I had the BRCA 2 gene Mutation was 50-50 ever since we found out my mom had it a few years ago. They say 50-50, but I knew in my heart I had it all along.
When I found out I was positive, I knew I’d go through with the surgery right away. So, three months later, here we are.
People tell you you’re brave. And it makes you feel brave. People tell you you’re strong, and you feel strong. People tell you they love you, and you feel THE LOVE.
 
I’m waking up tomorrow morning and I’m doing the damn thing. Surgery is scheduled for 12pm and expected to take about 4 hours. Feel free to book me in your schedule for some prayer at some point during that time.
I’m a little scared and a little anxious, but I do believe the prayers are working because I’ve been much more calm than I’d ever imagined. Thank you to everyone who has been praying for my peace pre surgery.
During this process, I’ve been reminded how meaningful a simple note of encouragement or support can be for someone. Nothing like some mid day tears while waiting in line at target when I see an email come through from someone unexpected or coming home to a card in the mail.
On Saturday, I was planning on meeting a couple of my friends for book club and what I didn’t know is they had actually planned a going away party for my boobs. That’s right. Bye, bye boobies. There was no stopping the tears when I walked in the door. Although I tried, because I spent more time than usual on my makeup. Which means 10 minutes instead of 5, but still. It made me feel really special and reminded me that I am lucky to have meaningful, real friendships and people who will be there no matter what.
The group- with my very pregnant sister on the far right!
Cupcakes from Holy Cow Cupcakes- soooo good.
I waited to read these until the next day. Didn’t need more tears, we were ready to have a fun night.
This bartender had these boobs on his shirt, so naturally I needed a picture.
My loves. Thank you girls for making me feel so very loved.
 
So here we are, ready set go. Ready to get on with the rest of our lives and use this experience to be stronger than before.
I’ve appreciated each and every word of encouragement and all of the prayers. Much Love.

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